The Central and South Genomic Medicine Service Alliance recently met with colleagues from Ontario, Canada, who work within inherited cardiac conditions, and post‑mortem genomics. The meeting brought together professionals from clinical genetics, pathology, research, and coronial services to share high‑level learning and compare approaches used in different regions.
Attendees included:
- A researcher and pathway specialist from the Office of the Chief Coroner of Ontario, whose work focuses on family communication, referral processes, and improving access to clinical genetics following SUD and SCD.
- A forensic and cardiovascular pathologist who leads Ontario’s post‑mortem genomics programme, supporting investigations into potential inherited cardiac conditions.
- Representatives from the West Midlands ICC and SUD pathways, who outlined the UK approach to coordinating genomic testing and supporting families.
The discussion explored how Ontario has developed structured processes for family communication, referral into clinical genetics, and the handling of post‑mortem samples. Their model includes a clear referral route for families, standardised approaches to tissue sampling, and a strong emphasis on education for coroners and pathologists.
There were notable similarities between the Canadian and UK approaches, particularly around the importance of early identification, consistent communication with families, and ensuring equitable access to genomic testing. The meeting also highlighted shared areas of interest, including pathway development, training.
This engagement supports our ongoing work to remain connected with developments in the field and to understand how other services organise their pathways and support families following sudden unexpected or sudden cardiac deaths.