This section will focus primarily on Lynch Syndrome, but if you have any inherited cancer predisposition syndrome there is a chance your relative may also have it.
This chance is as high as 50% in most inherited cancer predisposition syndromes. Tell your family about it and encourage them to speak to their GP about it- genetic testing could save their life.
If you are not in contact with your family members for any reason, speak to your genetic counsellor. They have ways that they can help you contact your relatives to inform them of their increased risk. They do not have to give the relative your name if you do not want them to.
I have been given a diagnosis of Lynch Syndrome: what now?
If you are worried about your diagnosis or how to tell your family or have any other questions please speak to your genomic counsellor who will be able to provide you with personalised support. These resources can be used alongside support from your team:
These websites provide information on living with an increased genetic risk, talking to family about it, ways of finding cancer earlier and reducing the risk of developing cancer if you have Lynch Syndrome.
RM Partners: Lynch syndrome information
Patient Info Library: Lynch syndrome
There are also apps that provide support for patients with Lynch Syndrome: